Guidelines & best practice recommendations

Overview of guidelines & recommendations currently under preparation or planned by ESPN and/or in conjunction with other societies in the field of Pediatric Nephrology

Disease group Clinical guidelines, recommendations, position papers currently prepared or planned
Acute Kidney Injury  
Hypertension  
Nephrotic syndrome

Steroid resistant nephrotic syndrome; IPNA; coordinator: Dieter Haffner; haffner.dieter [at] mh-hannover.de

Congenital nephrotic syndrome; ERKNet; coordinator: Olivia Boyer-Guillon; olivia.boyer [at] aphp.fr

Treatment of FSGS relapses post-transplant; ESPN idiophatic nephrotic syndrome & transplant WG; coordinator: Marina Vivarelli; marina.vivarelli [at] opbg.net 

Hereditary /immune mediated glomerulopathies  
Thrombotic microangiopathies  
CAKUT & Urinary tract infections

Urinary tract infections (diagnosis & therapy); ESPN CAKUT WG & ESPU), coordinator: Ann Raes; Ann.Raes [at] UGent.be

Renal dysplasia; ERKNet; coordinator: Max Liebau, Giovanni Montini    

Ciliopathies, e.g. ARPKD, ADPKD, ADTKD, TSC, VHL  
Tubulopathies

X-linked hypophosphatemic rickets: a clinical practice recommendation; ESPN inherited kidney disease WG, ESPE bone and growth plate WG, ERKNet etc. (10 Eurooean Societies/networks); coordinator: Dieter Haffner; haffner.dieter [at] mh-hannover.de

Bartter Syndrome; ERKNet; coordinator: Martin Konrad, Francesco Emma; francesco.emma [at] opbg.net

Cystinuria; ERKNet; coordinator: A. Servais

Metabolic nephropathies and stone forming disorders  
Obstructive nephropathies Obstructive uropathies; ERKNet; coordinator: Max Liebau, Giovanni  Montini
Enuresis and Lower urinary tract dysfunction  
Pediatric chronic kidney disease & dialysis

Vascular access for hemodialysis, ESPN dialysis WG, coordinator Rukshana Shroff; Rukshana.Shroff [at] gosh.nhs.uk

Clinical practice recommendations for use of GH in children with CKD; ESPN CKD-MBD, Dialysis & Transplant WGs, coordinator: Dieter Haffner; haffner.dieter [at] mh-hannover.de

Position paper on the use of cinacalcet in children on dialysis, ESPN CKD-MBD & dialysis WG; coordinator: Justine Bacchetta; justine.bacchetta [at] univ-lyon1.fr

 

Clinical practice recommendations for bone evaluation in pediatric CKD, ESPN CKD-MBD WG and EUROD coordinator: S. Bakkaloglu; sevcan [at] gazi.edu.tr

Clinical practice recommendations on the management of CKD-MBD after renal transplantation in children; ESPN CKD-MBD & Dialysis WGs, coordinator: Dieter Haffner; haffner.dieter [at] mh-hannover.de

Guidelines under preparation by the Renal Nutrition Taskforce:

Managing protein-energy requirements in children with CKD 2-5D

Dietetic management of calcium-phosphate in children with CKD2-5D

Vitamin and mineral requirements in children with CKD 2-5D

Delivery of the nutritional prescription (gastrostomy tube feeding)

Dietary management of potassium in children with CKD 2-5D

ESPN Renal Nutrition Taskforce in conjunction with ASPN, coordinator Rukshana Shroff; Rukshana.Shroff [at] gosh.nhs.uk

Lipid apheresis in children; ERKNet; coordinator: Claus P. Schmitt

Pediatric transplantation

CMV infection in pediatric renal transplantation
EBV infection in pediatric renal transplantation
ESPN transplant WG & IPTA, coordinator Burkhard Tönshoff; Burkhard.Toenshoff [at] med.uni-heidelberg.de

Perioperative care in paediatric renal transplantation; ESPN transplant WG, CERTAIN & ERKNet, coordinator: Lars Pape; Lars.pape [at] mh-hannover.de  

Renal neoplasms Monoclonal gammopathies of renal significance; ERKNet; coordinator: P.Ronco, J.Wetzels
General aspects/ methodology

Nephrogenetic Diagnostics; ERKNet; coordinator: Nine Knoers

*this list contains only multinational projects