IPNA Patient Education: Help us with further development and join the survey

Dear IPNA colleague,

The IPNA HomePage now contains a tab “For Patients and Parents”, which takes you to :

www.ipna-online.org/patient-education

This site contains links to Patient Education materials which are categorized, and can be searched for by ‘Disease’, ‘Language’ or ‘Country of origin’. Patient oriented information about common pediatric kidney diseases is available in more than 12 languages.

We aim for this to serve as a world-wide resource collection to provide uptodate knowledge and educational support to our patients and their families.

We request that you:

  1. Examine the listed resources and provide feedback on their suitability.
  2. Share this web address with your patient families and encourage its utilization.
  3. Join in the effort to add on more resources particularly for languages and regions that are still under-represented. Please send us material that you think may be useful for this effort.

We request you to take a few minutes to answer the questions in the survey below. This will help us to make additions and modifications relevant to your requirements.  

Survey Questions for IPNA Members  

1. Please visit the Patient/Parent Education page on IPNA website

2. Browse the page a bit.

3. Take the quick survey, that contains only 4 questions.

FOR PATIENTS /PARENTS

We kindly ask you if you can forward our second survey to your patients.

The survey link is following: https://www.surveymonkey.com/r/3NTS5SP

Thank you very much for your cooperation.

Have a nice day and kind regards,

Sushmita Banerjee / Patient Education Committee

Peaceful Kidneys, Save Lives - Annual meeting of the Korean Society of Nephrology

Dear all,

just a few days away left from the abstract submission deadline for the 39th annual meeting of the Korean Society of Nephrology. On behalf of the Organizing Committee of KSN 2019, we would like to invite you to KSN 2019 and to take part in the scientific program by submitting abstracts and presenting their research results and cases. (Click here to submit abstracts.) Those who submit abstracts and are accepted will be given the opportunity to receive travel grants.

The deadline for abstract submission is March 3, 2019 and the deadline will not be extended.

Following are the important dates of KSN 2019:

Abstract submission deadline: March 3 (Sun), 2019

Acceptance notice: March 19 (Tue), 2019

Pre-registration deadline: April 30 (Tue), 2019

 

Invitation and Call for Papers

Dear colleagues and friends,

The 50th Annual EWOPA (European Working Group on Psychosocial Aspects of children with Chronic Renal Failure)  conference will be held in Helsinki, Finland, May 23-25th, 2019. It is our great pleasure to invite you all there. We welcome the multiprofessional renal team members from all over Europe: nurses, pediatric nephrologists, social workers, teachers, psychologists, psychiatrists, music therapists, dietitians and physiotherapists.  

The website of the conference is now open at https://www.ewopahelsinki.fi/

The abstract deadline is February 28th, 2019. Please check the Guide to abstract submission and send your abstract to EWOPA19 [at] hus.fi

The venue is The New Children’s Hospital which opened in September 2018.  

Registration deadline: Early bird April 30th 2019

Late & onsite registration May 23th, 2019             

 

Kind regards,

Elisa Ylinen, Chris Reid, Dirk Bethe, Lore Willem, Robert Novo (EWOPA working group) and the local organizing committee

IPNA Sister Centre program 2019

IPNA is excited to open a Sister Centre program applications in 2019! Read carefully the requiremensts and criteria and submit your application online. The deadline is on 1st April 2019. 

More information here

 

Sad news for the entire PN community

With much regret we report that on 7 January 2019 Dr. Horacio Repetto, a founding member and key figure in the development of our society ALANEPE, passed away.

After completing  his fellowship in Pediatric Nephrology at University of Chicago, Dr. Repetto returned to his beloved Argentina, where he established the pediatric nephrology service at Hospital Nacional Alejandro Posadas, one of the most important hospitals in the country. In Argentina he is recognized as one of the pioneers and leaders of the specialty. He was a founding member of ALANEPE and IPNA councilor for 6 years. Dr. Repetto authored numerous scientific articles published in high-impact journals and participated in the training of many of the Latin American pediatric nephrologists.  We will remember him for his passion, magisterial lectures in subjects such as renal physiology, tubulopathies, fluids and electrolytes, but above all, we will remember him for his humbleness , kindness and humaneness.

As a last tribute, please watch here the interview with Dr. Repetto.

 

 

IPNA Launching Campaign to Raise Money for Program Growth

GREAT CARE FOR LITTLE KIDNEYS EVERYWHERE is IPNA’s goal, which we can achieve by accelerating the efforts of IPNA volunteer physicians globally. Education and training are our powerful tools that need to be increased to meet the need. Join this effort to insure these vital programs are sustainable. Please go to the Little Kidney’s website and review the giving options  that include establishing a legacy gift, supporting fellowships, teaching courses and other opportunities. IPNA’s goal is to have a pediatric nephrologist providing service in all communities in need. Everywhere. Please give now. Thank you.

IPNA supports World Kidney Day 2019

IPNA aims to promote education and screening of children all over the world. World Kidney Day is a wonderful opportunity to improve the care of children
with kidney disease.
Each year, IPNA organises a contest to encourage such an action by providing USD 5,000 to one pediatric nephrology center from a developing country throughout the World. A specific IPNA committee will select one center. 

Deadline for the applications: January 30th, 2019

Find out more about the World Kidney Day here

Read the requirements and submit your application online here 

On behalf of the World Kidney Day Committee: Amal Bourquia / Committee Chair
Pierre Cochat / IPNA President

IPTA 2019 - Call for abstract now open!

Submit your abstract for the upcoming IPTA 2019 conference. You can read more information about the event and submissions here

New Book Release: Critical Care Pediatric Nephrology and Dialysis: A Practical Handbook

With endorsement of the PCRRT Foundation, we would like to announce our upcoming Book entitled 'Critical Care Pediatric Nephrology and Dialysis: A Practical Handbook' that will be published later this year by Springer's Publishers.   This book is a practical handbook, protocol based that provide clinician an armamentarium to perform Plasmapheresis, ECMO, SLED, HD, PD, CRRT, manage inborn errors of metabolism, fulminant liver failure, vascular access and practical aspects of all renal replacement therapy in pediatric patients. Topics of interest include focus on neonatal AKI and devices, ongoing updated research in AKI and RRT, as well as focus on hepatic support system.

The chapters are state of art, written by experts in the field and allows for collegial interchanges of ideas with focus on best practice on the care of critically ill children. This is a passion of many of us and is a direct result of collaborative efforts that began at the IPNA meeting in Brazil and was solidified at the PCRRT 9 meeting in the US a year ago.  In this enclosure you will note a true multicenter, multi-continental work by experts in the field.  We hope that this practical handbook will allow for a succinct and clear guide to identification, treatment and care of children with critical illness that you take care of.

Timothy Bunchman, USA
Sidharth Kumar Sethi, India
Rupesh Raina, USA
Mignon McCulloch, South Africa

EAPS 2018: Registration Savings Deadline: October 17, 2018

EAPS 2018: The 7th Congress of the European Academy of Paediatric Societies

October 30-November 3, 2018 in Geneva, Switzerland.

Website: http://www.eaps.kenes.com/2018

Registration Savings Deadline: October 17, 2018

Serving as a nexus for the wealth of knowledge provided by three leading paediatric societies, the 7th Congress of the European Academy of Paediatric Societies (EAPS 2018) promises to build on the reputation of previous highly successful meetings. Paediatric professionals from around the world will gain unparalleled access to the best scientific research programmes.

Firmly established yet dedicated to thinking outside the box, EAPS 2018 aims to engage the world’s best in a hearty exchange of experiences and expertise in research and clinical care. Europe's foremost paediatrics subspecialty societies EAP, ESPNIC and ESPR have dedicated their time and formidable talents into organizing an stellar educational/research forum that will celebrate outstanding science in all areas of paediatrics.​​

Fellowship program: Application session is currently ongoing

Apply now for IPNA Fellowship program. Deadline is on 1st October. More information about the program you can find on the Fellowship webpage and you can always contact us on office [at] ipna-online.org. On the webpage you can find also complete list of the training centers. 

We are looking forward to receiving your applications! 

Invitation to join the SONG-Kids Delphi Panel

The Standardized Outcomes in Nephrology – Kids (SONG-Kids) is an international initiative that aims to identify outcomes that are important to children and adolescents with chronic kidney disease, their caregivers and families, clinicians, and other health professionals. This will inform the development of a core outcome set to be reported in all clinical trials (and other research) in children with chronic kidney disease (all stages).

Establishing a core outcome set can help to ensure that trials report outcomes that are important and relevant for decision-making.

You are invited to participate in the SONG-Kids Delphi panel to achieve consensus (agreement) on the most important outcomes that should be included in the core outcome set for kidney disease. This involves completing a Delphi survey, which includes completing two rounds starting in June 2018 and each survey should take approximately 10 - 15 minutes to complete. All participants will receive a copy of the results.

To join the SONG-Kids Delphi Panel, you can find the survey at: 

http://songinitiative.org/projects/song-kids/song-kids-delphi-survey/  

Participation call: Submit your manuscript

This is an open call for participation for the dedicated Research Topic “NSAIDs Use, Safety, Efficiency and Risk-Benefit Ratio in Pediatrics” edited by Pr Martin Chalumeau and Pr Philippe Lepage for the journal Frontiers in Pediatrics. We plan to build a collection of manuscripts from international experts to highlight the importance of the debate on NSAID safety profile and risk-benefit balance in the pediatric population and provide a comprehensive view of this topic.

We would be happy to receive contributions on various topics within this theme by the deadline of 30th October 2018. Submissions can include original articles, reviews, study protocols, case reports, and opinion pieces and we would encourage to first submit a preliminary abstract prior to your full manuscript.

Frontiers in Pediatrics is a rapidly expanding journal of the successful Frontiers journal family and has received its first Impact Factor of 2.17. All submitted manuscripts will be peer-reviewed and, once accepted for publication, will be indexed in PubMed as well as Scopus and charged article publishing fees depending on the article type to ensure the project and resulting E-Book are open access.

Please find below a table summarizing the fees:

Category Article type Fees (USD $)
A Original Research Articles, Reviews 2241
B Mini-Reviews, Case Reports 1150
C Opinion, General Commentaries 450

Frontiers do provide solutions for those who are not able to meet these costs such as its waivers program and institutional agreements.

If you have any questions on the project, please do not hesitate to contact Frontiers in Pediatrics at pediatrics [at] frontiersin.org.

Great Ormond Hospital is looking for a new Consultant Paediatric Nephrology!

Great Ormond Street Hospital for Children NHS Foundation Trust and the Institute of Child Health is looking for a new Consultant Paediatric Nephrology.

Applications deadline: April 8th, 2018
Interview date: May 15th, 2018

Download the announcement

Pr Gavin Arneild

We are sorry to announce that Prof Gavin Arneil from Glasgow died peacefully on Sunday January 21st. Gavin Arneild was one of the founders of ESPN and organized the first ESPN meeting in Glasgow 50 years ago. Our thoughts are with his family today.
As a last tribute, please watch here the last video featuring Prof Arneil which was recorded during the last ESPN Congress in Glasgow in September 2017.

→ View video

It is now time to renew your IPNA membership!

Just click on this link and follow the instructions.

2018 is around the corner!

2017 is nearly ending and it is now time to join or re-join IPNA! 

IWDN 2018 Registrations now open

IPNA is delighted to announce that the Registrations for the next International Workshop on Developmental Nephrology are now open!

Register now!

Disasters: Emergency numbers

For emergency contacts and donations, please follow this link

50th Anniversary Meeting of the ESPN

The 50th Anniversary Meeting of the European Society for Paediatric Nephrology starts today!

Learn more

Cystinosis Research Foundation - Fall 2017

Cystinosis Research Foundation - $2.5 million available for new grants IP.

The Cystinosis Research Foundation (CRF) is pleased to announce its Fall 2017 call for research proposals and fellowships. CRF are accepting applications for research studies and for the Post-Doctoral Cystinosis Research Fellowship Program. Their goal is to fund the best and most promising research in the world in an effort to find better treatments and a cure for cystinosis.

Learn more

Teaching Course of Pediatric Nephrology

A Teaching Course of Pediatric Nephrology will take place in Bamako, Mali, from September 27th to September 28th, 2017, under the guidance of Dr Djénèba Diallo.

Find more IPNA Teaching Courses

IPNA 2019: Save the date!

IPNA 2019 Congress will take place in Venice, Italy, from October 17-21, 2019.
Visit website

 

9th international conference on Pediatric Continuous Renal Replacement Therapy

The 9th International Conference on Pediatric Continuous Renal Replacement Therapy (PCRRT) will take place in Walt Disney Resort, Orlando, USA, from August 31 to September 2, 2017.

Register now!

ISN 0by25 AKI Initiative

Zero preventable deaths from AKI by 2025

IPNA 2019 Congress will take place in Venice!

At their meeting held during the WCN2017 Congress in Mexico city, the IPNA Executive Committee considered bids for the 2019 Congress from Calgary, Canada, Dublin, Ireland and Venice, Italy. The final decision is that the 2019 IPNA Congress will take place in Venice, Italy in the Fall 2019. The exact dates will be announced shortly and will be posted on the IPNA website. We hope to see you in Venice!

International Workshop for Clinical and Epidemiological Research in Pediatric Nephrology

May 24, 2017 - May 26, 2017
Heidelberg, Germany City

A pediatric nephrologist receipient of ISN Roscoe Robinson Award 2017

IPNA is proud to announce that Prof Mignon McCulloch, President of the African Paediatric Nephrology Association and Member of the Executive Council of IPNA, received the International Society of Nephrology Roscoe Robinson Award 2017 during the World Congress of Nephrology which was just held in Mexico from 21-25 April.

International Pediatric Nephrology Fellows Seminar

April 19-20, 2017 in Mexico City!

ISN World Congress of Nephrology 2017 : Pediatric Satellite Symposium

We are happy to announce the program for the upcoming WCN 2017 IPNA-ISN pediatric symposium, which will be held next April 21 at Mexico City.

Today is World Kidney Day!

Today is World Kidney Day! Take care of your kidneys and raise awareness with us!

IPNA supports the 0by25 initiative

This initiative aims to eliminate preventable deaths from Acute Kidney Injury (AKI) worldwide by 2025.

IPNA supports the World Kidney Day

Each year, IPNA encourages such an action by providing USD 5,000 to one pediatric nephrology center from a developing country throughout the World.

International Workshop for Clinical and Epidemiological Research in Pediatric Nephrology

May 24, 2017 - May 26, 2017
Heidelberg, Germany City

Continuing Education Programme in Nephrology and Urology Week

Monday 3rd – Friday 7th April 2017, UCL Institute of Child Health and Great Ormond Street Children’s Hospital
This 4 and half day course covers the major topics in Paediatric Nephrology and Urology. The course will be of interest to trainees and consultant-level physicians and surgeons involved in the care of children with kidney and lower renal tract disorders. Attendees can attend the whole week or individual days.
Who should attend? General Paediatricians, Paediatricians with an interest in nephrology, Paediatric Nephrologists in training.
Contact ICH Events:
Tel. +44 (0)207 905 2699 or +44(0)207 905 2675
Email ich.events [at] ucl.ac.uk

Saving Young Lives Project

A partnership to deliver care of Acute Kidney injury in the developing world
CME program in Dakar: the First International African Dialysis Conference: over 350 attendees; SYL sponsored 7 individuals from 6 West African countries to discuss the challenges, successes, and initiatives they have undert aken to expand PD in their countries.

IPNA supports the World bedwetting Day

World Bedwetting Day is initiated and supported by the World Bedwetting Day Steering Committee, which consists of the International Children’s Continence Society (ICCS) and the European Society for Paediatric Urology (ESPU) along with professional groups from across the globe.